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- Lundälv, Jörgen, 1966, et al.
(författare)
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Awareness and the Arguments for and against the International Classification of Functioning, Disability and Health among Representatives of Disability Organisations
- 2015
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Ingår i: International Journal of Environmental Research and Public Health. - : MDPI AG. - 1660-4601 .- 1661-7827. ; 3:12, s. 3293-3300
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Tidskriftsartikel (refereegranskat)abstract
- Disability organisations have not been engaged in the debate about the International Classification of Functioning, Disability and Health (ICF) in Sweden. We wanted to know representatives’ attitudes about the ICF. The aim of the study was to elucidate the arguments for and against the ICF among representatives of disability organisations. The study consisted of eighteen representatives (from six disability organisations) that answered electronic questionnaires. The questionnaires involved ten open questions about the arguments for and against the ICF. The answers of the questionnaires have been categorized according to qualitative content analysis. Our results indicated four themes: awareness, arguments for and against, influence and the future. More than half of the representatives had very limited awareness of the ICF. There was an explicit criticism of individual classification but more positive comments about classification on an aggregated level. The most important issue for representatives was influencing social policy in society, not learning and spreading information about the ICF.
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| 2. |
- Lundälv, Jörgen, 1966, et al.
(författare)
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The ICF: International Classification of Functioning, Disability and Health (ICF) - A Swiss army knife? Accessibility and disability in a Scandinavian disability magazine (SDM) - A quantitative content analysis
- 2012
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Ingår i: Health Policy. - : Elsevier BV. - 0168-8510 .- 1872-6054. ; 108:1, s. 67-75
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Tidskriftsartikel (refereegranskat)abstract
- Background The study describes the extent to which the concept of accessibility and accessibility issues has been reported in a national Scandinavian disability magazine. In this study particular attention is paid to how the compatibility between the various domains of the international classification – International Classification of Functioning, Disability and Health (ICF) – has been covered in the magazine over a decade. Furthermore, other types of descriptions that the magazine has made of accessibility for people with physical disabilities are considered. Methods The study is based on a quantitative content analysis of a total of 326 articles from the Swedish disability magazine (SDM); 450 text pages published during the years 2000–2009. The magazine's coverage has been comprehensive. Results and conclusions More than half of the studied texts were news items about various accessibility issues. Every third article can be characterised as a news article or feature article. The most frequently reported of the ICF domains consist of two perspectives: environmental accessibility and civil rights. Public opinion articles in the form of letters to editors and editorials focused on accessibility have a low frequency. Likewise, research reports are few. The study has included a review of illustrations and photographs. The illustrations are generally of high quality, reinforcing the disability message of the article. Keywords Accessibility; Disability; Swedish disability magazine (SDM); Quantitative content analysis; The International Classification of Functioning; Disability and Health (ICF); Sweden
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| 3. |
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| 4. |
- Törnbom, Karin, 1982, et al.
(författare)
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Long-term participation 7-8 years after stroke: Experiences of people in working-age.
- 2019
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Ingår i: PloS one. - : Public Library of Science (PLoS). - 1932-6203. ; 14:3
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Tidskriftsartikel (refereegranskat)abstract
- To enhance the understanding of long-term participation in working-aged people 7-8 years after stroke.This study had a qualitative design, using a thematic analysis methodology. Eleven individuals took part in an in depth interview 7-8 years after a first time stroke. They had received care at the Sahlgrenska University Hospital in Gothenburg, and were recruited as a heterogenic sample with respect to age, gender, stroke severity and subtype.From the participants' experiences four themes emerged: "Returning to work after stroke"; "Working life 7-8 years after stroke"; "Social life 7-8 years after stroke"; and "A state of reorientation in life". Quotes about experienced participation in everyday life were summarized and presented as "Participation after stroke narratives". Participants chose to emphasize on work- and social life when describing situations of successful participation. Being included in the wider community and having a sense of purpose, when interacting with others, were factors that these narratives had in common. Participants had gradually become accustomed to a somewhat altered life situation. Some consequences after stroke were still considered frustrating in social or work situations. However, the importance of these issues had reduced and were no longer problematized.Participants felt content with their everyday life in general, which was a principal and positive result of this study. Reaching a stage of acceptance seemed to be a complex and continuous struggle, and an individual approach in long-term rehabilitation would be valuable to support this personal process. More knowledge about what factors that facilitate participation in people of working-age many years after stroke is needed, so that more people can reach a state of positive identity and participation.
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| 5. |
- Törnbom, Karin, 1982, et al.
(författare)
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”My life after stroke through a camera lens” – A Photovoice study on participation in Sweden
- 2019
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Ingår i: PLoS ONE. - : Public Library of Science (PLoS). - 1932-6203. ; 14:9
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Tidskriftsartikel (refereegranskat)abstract
- Background An increasing number of people with stroke live in their communities, yet the understanding of how their reintegration into society can best be facilitated is incomplete. If needs are not sufficiently met and difficulties overcome, it may result in limited participation and decreased life satisfaction for this group. We aimed to understand life after stroke through the lens of participants’ cameras, and hence their views and experiences guided this study. Methods By the means of photovoice, an action research method, this study was conducted in a collaborative format with six women and five men after stroke. Participants photographed in everyday life for up to four weeks and then met to discuss all images in a focus group setting. Subsequently, participants gave feedback on the method and discussed the upcoming photography exhibition. All photos and the three focus group discussions were analyzed using a thematic analysis with an inductive approach. Results In the focus group discussions, life after stroke were conceptualized through five main themes: a driving force to participate in society; managing everyday life through inventiveness and persistent training; insufficient healthcare and rehabilitation in the long-term perspective; finding meaningful relationships and activities in daily life. Participants’ voices are made clear through selected photos, which aim to present each theme and make results easier to understand. Conclusions Participants found new ways to approach everyday life situations and had thereby regained a sense of control in life. However, it was evident that psychological processes towards adaptation were hindered by depression and that some individuals felt alone in an ongoing struggle. Additionally, available interventions a long time after stroke were not flexible enough to address all participants’ needs.
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| 6. |
- Törnbom, Karin, 1982, et al.
(författare)
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Self-Assessed Physical, Cognitive, and Emotional Impact of Stroke at 1 Month: The Importance of Stroke Severity and Participation
- 2017
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Ingår i: Journal of Stroke & Cerebrovascular Diseases. - : Elsevier BV. - 1052-3057. ; 26:1
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Tidskriftsartikel (refereegranskat)abstract
- Objectives The aims of this study were to describe the self-assessed physical, emotional, and cognitive impact of stroke and to investigate associations with participation and stroke severity in early stage (1 month) poststroke. Methods Participants (n = 104, mean age = 68) with reduced upper extremity function assessed at day 3 were included from a Swedish stroke unit. Participants were evaluated with The National Institutes of Health Stroke Scale at arrival, median 7.9 (0-24). The cohort was assessed for their perceived impact of stroke with the Stroke Impact Scale at 1 month poststroke. Results The perceptions of emotional health, communication skills, and ability to remember were perceived as quite good, with a mean score of 83-86. However, nearly 60% reported limitations in participation. This group also evaluated their physical function to be significantly lower compared to participants who did not report limitations in participation. Conclusions One month poststroke, a lower score on self-assessed physical function was associated with both a perceived restriction in participation and a more severe stroke. The association of physical function and perceived participation at 1 month poststroke needs to be taken into account when planning the early rehabilitation.
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| 7. |
- Törnbom, Karin, 1982, et al.
(författare)
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The impact of physical functioning on participation in the first year post-stroke
- 2017
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Ingår i: Acta Neurologica Scandinavica. - : Hindawi Limited. - 0001-6314. ; 135:6
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Tidskriftsartikel (refereegranskat)abstract
- Studies have investigated predictors of participation and showed that fewer depressive symptoms, physical independence, and age could predict the level of participation after stroke. Association between self-assessed functions and perceived levels of participation over time is not yet known. The aim of this study was to investigate perceptions of participation and how this related to background characteristics and self-assessed rehabilitation outcomes, at 1, 6, and 12 months post-stroke.
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| 8. |
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| 9. |
- Törnbom, Marie, 1950, et al.
(författare)
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Occupations and means of living in adults with cerebral palsy or meningomyelocele during two decades in Sweden.
- 2011
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Ingår i: Scandinavian Journal of Disability Research. - : Stockholm University Press. - 1501-7419 .- 1745-3011. ; 13:1, s. 21-35
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to focus on education, work and means of living during two decades in two groups of people with cerebral palsy (CP) or meningomyelocele (MMC) within the framework of social policies. Two groups of patients at an adult habilitation unit were interviewed by telephone – Group A (n=55) in 1983 and again in 1997 (n=42), and Group B (n=30) in 1997. All but one subject in Group B had attended upper secondary school (1997), compared with 61% in Group A (1983). In 1983, a majority of Group A worked or studied. In 1997, most of them still worked or studied, compared with only two thirds of the 1997 Group B, but both the A and B groups worked part-time significantly more often in 1997 compared with Group A in 1983. Of those who worked, about one third of Group A and more than half of Group B had wage subsidies from the state in both 1983 and 1997. The majority of Group A thought that over the period from 1983–97 the labour market had generally become harder, which had affected people with disabilities in general in a negative way. Almost all in Group A in 1983 and Group B in 1997 were content with their work tasks and work environment, but one third of Group A had problems within these areas in 1997. Significantly more people had disability pensions, of varying amounts, in 1997 (A and B groups) than in Group A 1983. In conclusion, it seems as if social policies have managed to integrate these people into the regular educational systems and support them financially, but have failed to stimulate the labour market to offer them work, especially regular and permanent work without wage subsides.
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